Resources

Navigating life with Very Early Onset (VEO) Inflammatory Bowel Disease (IBD) – including Crohn’s Disease and Ulcerative Colitis – can be overwhelming for both parents and young warriors. You’re not alone, and there’s a community of support, knowledge, and resources waiting to help. Here are some trusted organizations and networks dedicated to supporting families through the challenges of VEO-IBD:

Children’s Hospital of Philadelphia (CHOP) – Center For Pediatric Inflammatory Bowel Disease

Visit CHOP’s VEO-IBD Program

CHOP is a pioneer in the care and research of VEO-IBD, offering an extensive program dedicated to diagnosing, treating, and supporting children with early-onset IBD. Their multidisciplinary team provides comprehensive care tailored to the unique needs of young patients. Parents can find:

  • Educational Resources: In-depth guides about VEO-IBD, treatment options, and disease management.
  • Specialized Care Team: Access to pediatric gastroenterologists, immunologists, dietitians, and mental health specialists.
  • Research and Clinical Trials: Cutting-edge research aimed at understanding the genetic and environmental factors of VEO-IBD.
  • Support Services: Family support groups and counseling to help navigate the emotional aspects of IBD.

Crohn’s & Colitis Foundation of America 

Explore Resources at Crohn’s & Colitis Foundation

The Crohn’s & Colitis Foundation offers a wealth of resources tailored to families facing VEO-IBD, including:

  • Educational Materials: Age-appropriate guides to help children understand their condition.
  • Support Communities: Opportunities to connect with other parents, caregivers, and young patients through local chapters and virtual events.
  • IBD Help Center: Access to trained specialists who can provide guidance on treatment options, school accommodations, and coping strategies.
  • Advocacy and Awareness: Information on how to advocate for better healthcare access and support IBD research.

Gutsy Network

Follow Gutsy Network

An empowering community dedicated to connecting and supporting young IBD warriors and their families. Gutsy Network is an invaluable resource for:

  • Real-Life Stories: Inspiring stories from families navigating life with VEO-IBD, fostering a sense of community and understanding.
  • Social Media Support: Active online communities offering emotional support, practical advice, and friendship.
  • Advocacy and Awareness: Campaigns and initiatives aimed at increasing awareness of pediatric IBD and reducing stigma.

You’re Not Alone

At SUPERKID, we understand the challenges of raising a child with VEO-IBD. Our mission is to build a supportive community that empowers parents and brings joy to little warriors. By connecting with these trusted resources, you’re taking a powerful step toward navigating this journey with strength and hope.

Together, we can make the path a little brighter for your gutsy warriors!